Jump to content
Little Als Mum

Allergic Alveolitis - Support Thread

Recommended Posts

Alveolitis - Support Thread

Extrinsic Allergic Alveolitis
Synonym: Hypersensitivity Pneumonitis.
It includes farmer's lung and bird fancier's lung, including pigeon fancier's and budgerigar fancier's lung.

http://www.patient.co.uk/showdoc/40000643/
http://www.emedicine.com/radio/topic276.htm
http://www.ccohs.ca/oshanswers/diseases/alveolitis.html

As you may know I have been unwell for some time now with what was first thought to be adult onset asthma. Some of my symptoms are fever, headaches, nausea, weightloss, cough and worse of all breathlessness. Now after numerous visits to the gp, tests, x-rays and a visit to the respiratory consultant I have been diagnosed with allergic alveolitis.

The consultant has ordered more tests - detailed breathing ones at the respiratory clinic and a high resolution ct scan - to be 100% sure of his diagnosis. I am currently waiting the results of my latest bloods which will show if there are parrot antigens present. I am of no doubt that I have this "thing". I am a realist.

The upshot of all this is that all of my beloved birds outside in the aviaries and flights have already been rehomed with my mum, ten minutes away. Hopefully my level of sensitivity will not be high enough to stop me visiting them. Only time will tell.

The conures, PnP and Sindy and Robbie the greys are at present in the room furthest away from me at home. My husband Ian is doing all of the duties associated with them and the air filter is on full pelt 24/7. The plan is that they will be going out to live in the re-inforced avairies in the spring. Hopefully that plan will enable me to keep them. If not - well cross that bridge should we come to it.

Since the little birds have gone and Ian taking over the parrots my health has improved a little though my breathing still causes me distress. Some days are worse than others and I could really do with a stair lift!

Knowing that I'm not the only member who has this, my dear friend Kerenza also being a fellow sufferer, we thought that a support thread would be a good idea. Somewhere for members to post their concerns, questions, support and healing thoughts. Thanks for the idea Kerenza.

I must now add my thanks to all of my friends, you know who you are and family who have helped me through this first stage as I came to terms with things. Kerenza and Rubytoo - thankyou.
Keep the support coming.
xxx

Share this post


Link to post
Share on other sites

give you so many cyber hugs before but you can never get enough hun (((((((((((((((((((((((((((((((((hug)))))))))))))))))))))))))))))))))))

Share this post


Link to post
Share on other sites

Thankyou guys.

I think I'm over the worst of the shock now, though some days are harder both physically and emotionally than others.

 

My support goes out to Kerenza who's going through the same.

{{{{hugs}}}}}

And thankyou Kerenza for the idea of this thread.

 

Please guys if you want to share any thoughts, concerns, worries about this condition feel free to post.

Through this thread we are hoping to help each other should we ever need the support.

Share this post


Link to post
Share on other sites

((((((((((Lou))))))))))) there's not much more i can say which i haven't already, but you know how desperately i wish things were different.

 

It took months of seeing my gp and being treated for various things, chest infection/asthma etc before finally finding out from a specialist what i actually had. The average GP will admit to knowing virtually nothing about this illness, mine was honest enough to anyway. He even said he was going to do some research on the internet!

 

I really hope this thread doesn't get many "members" as i wouldn't wish this on anyone, but if it helps even 1 person or offers support then it will be a good thing :-)

Share this post


Link to post
Share on other sites

Kerenza wrote

I really hope this thread doesn't get many "members" as i wouldn't wish this on anyone, but if it helps even 1 person or offers support then it will be a good thing

I can't really add anything to that, except my deepest heartfelt sympathy to any bird loving person who has to go through this.

And thanks to Louise and Kerenza, for starting this support, and being so caring and brave.

X

Share this post


Link to post
Share on other sites

Louise

 

I am so sorry to hear your news, if there is anything I can do to help, please do not hesitate to ask seeing I am local to you.

Sending you big {{{{hugs}}}}}

 

Take Care

Gill

Share this post


Link to post
Share on other sites

i am so sorry to read this my heart really goes out to the pair of you - ive not had archie a year yet but couldn't imagine having to get rid of him so i can only imagine what you are both going through its hard to know what to say - if only words could make things better sending you both and any1 else who may be suffering {{{{{ big hugs}}}}} and fingers crossed 1 day there may be something to help you so that you may enjoy your birds as you did before xxxx

Share this post


Link to post
Share on other sites

Dear LAM, I know what you are going through only too well as I too have been diagnosed with this condition. It has been ongoing for 12 months and only just had a specific test for parrot antigens which proved to be positive, although I have known deep down for sometime that it was probably the case, as when we went on holiday last year there was a vast improvement in my energy levels and breathing.

 

At the moment my birds are still here but know that I must find them forever loving homes very soon. I am still in my heart battling with what is best even though I know it is inevitable that I cant keep my babies.

This decision is breaking my heart (and also Pauls), he loves the birds every bit as much as I do. It makes me feel so guilty that my illness is going to take these special friends away from us.

 

I have spoken at length with Kerenza today and would like to thank her for her support over the past weeks, it helps to know that someone understands and can truly share the painful emotions.

LAM, I had no idea you were going through the same torment, although it did cross my mind when you posted around Xmas that the flu symptoms wouldn't go away.

Our thoughts and wishes are with you and Kerenza, and thank you for starting this thread.

 

Dorrie

Share this post


Link to post
Share on other sites

What a terrible terrible thing..........its a bit like as bird lovers being told you are allergic to your children?........i can only imagine the frustration and heart tugging decisions that this illness carries and feel for anyone in this situation deeply.Loving your birds repays you with sickness is wicked in the extreame and something i pray i never have to deal with but commend you and your openess on what must be a traumatic thing to have to discuss aswell as deal with day to day.Thankyou for bringing it out into the open and to help possible future sufferers know what to expect.Good luck with your recoveries and the painful decisions needed in order to recover

 

bless you

Share this post


Link to post
Share on other sites

My heart goes out to all of you who are going through this and i must admit that i have worried over this since i have been struggling with this cough, although i dont have the breathlessness that you seem to be suffering. My eldest son has been particularly concerned as my symptoms worsened after we got Chi and he thought that it was something that the birds carried and passed on to humans and that he had given it to me. Think we have convinced him now though.

{{{{hugs}}}} to you all.

Share this post


Link to post
Share on other sites

(((((((Paulie))))))) i know only too well the feelings of guilt. Darren was very bonded with Sage and i still feel dreadful that because of me he had to lose him. We know deep down that it isn't our fault but logic doesn't always come into our minds :-( It was lovely chatting with you, i just wish it was under happier circumstances xxx

 

Only bird lovers can understand Vikky, that's why i found all the support on this site so helpful. I still get annoyed at people saying "you still have your dogs" or "you could try a different type of pet" It is indeed losing part of your family and so frustrating when people think you're making a fuss about "just a bird" they have no idea!

 

Aww Sue *hugs* i hope you're feeling better soon hun and that your sons mind is put at rest. Your specialist ruled the birds out though? I really hope Chi isn't part of the problem, grrr why do we need lungs?!!!xxxx

Share this post


Link to post
Share on other sites

I have not had any tests to definately rule the birds out my doctor just sais he didnt think that it was 'that sort of a cough' it is just a shame he doesnt know what sort of a cough it is. As i said though i dont seem to get the breathlessness just the uncontrollable cough that when it starts it wont stop for hours. Sorry ...waves to Kerenza.. hey hun how are you?

Share this post


Link to post
Share on other sites

For Suebarrass.

 

I had a cough started last summer and i have only just got rid of it in the last few weeks. It was so bad that i could not even hold a conversation. I spent the whole of christmas waiting for test results for allergic alveolitis. Luckly for me and my birds it was ok. I found these things helped maybe they will help you. Air puirier, drinking loads and loads of hot honey and lemon. Going over everything i could in the house with damp cloth everyday and when at its worst My friends took most of my birds away for a while. Now i have 4 cockatoos and 3 greys in the lounge and no cough. hope some of this may help you.

Share this post


Link to post
Share on other sites

Thankyou all. Each and every one of you. xx

Not having the best of days today so coming on here and finding such lovely thoughts for all who are going through this has lifted my spirits.

 

Dorrie (Paulie) so very sorry to hear that you too have this "thing" as I call it. My heart goes out to you and Paul too. It does affect the whole family. My daughter was probably more distraught than I was when my little birdies went to mum's.

 

I've had the dates through for my 3rd round of breathing tests 11 March and for the high res chest ct scan 25 March.

Getting there slowly by degrees.

 

Sue - hope you are soon on the mend hun.

Gill - thanks hun.

xx

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×